Table 3 Outcome measure and data collection timing for proposed outcomes and evaluation methods for the larger-scale evaluation
Outcome | Outcome measures | Timing | |||
|---|---|---|---|---|---|
Baseline | End of each “Encompass” group | Post-intervention | 3-month follow-up | ||
Proposed individual-level outcomes | Family Empowerment Scale (FES) | X | X | X | |
Empowerment ladder | X | X | X | ||
Parent Patient Activation Measure (P-PAM) | X | X | X | ||
Warwick-Edinburgh Mental Wellbeing Scale (WEMWBS) | X | X | X | ||
EuroQoL-5D-5-level (EQ-5D-5L) | X | X | X | ||
Parent/carer greatest needs and goals | X | X | |||
Economic outcomes | Childhood Cost Calculator (C3) | X | |||
Process outcomes | Fidelity checklist | X | |||
Direct observation | X | ||||
Group register | X | ||||
Intervention satisfaction survey | X | ||||
Qualitative semi-structured interviews | X | ||||